Carsten's appointment exceeded our expectations and we were definitely surprised by the proactive doctors at Children's Mercy!!! ENT decided they are going to take his adenoids and tonsils out, yeah! That means easier breathing, less snoring at night, and maybe, just maybe, he can close his mouth to breath and keep that cute little tongue in more:) They also saw a cyst in his throat possibly from being intubated during heart surgery that may have increased in size and contributed to his labored breathing. They are probably going to remove this during the surgery. Possibly tubes in his ears, depending on whether there is considerable fluid in his ears when he is under anesthetic.
GI went well also. The doctor doesn't want to do the nissen surgery, mostly because he is gaining weight (he was 21 lbs and 14 oz!) and he doesn't feel that the risks outweigh the complications especially since he is thriving. He thinks that he will outgrow the reflux, so, on Monday we are going back to radiology and getting what is called a GJ tube. They will convert his G-tube into a GJ. Basically, the tube will go down further into his small intestines and he will be fed continuously throughout the night. The intestines can't hold as much food as the stomach so he will get a slow drip through the night, about half of what he gets during the day now, and then we will feed him by mouth and smaller amounts through the tube during the day. The goal is to control the reflux, the food going into the GJ will NOT come up, it can't because its so far down, and buy him some time until he grows out of this.
I couldn't be more ecstatic about the progress and like I said the doctors proactive steps to help our son. I can't wait until Monday night, I can just turn the drip on at 8:00 and not have to wake him up again at 11 to feed him which also means Momma Bridges will get more sleep!!!
Chad is taking his exam right now for the follow on school next year. He will have an interview also sometime next week. I know he will do well on both and I'm so proud of him either way.
Have a great weekend!
Kari and Carsten
4 comments:
YEA!,YEA!,YEA!!! WHAT a great day!! I got your message, and will call you today or tomorrow!
I am thrilled for you guys about the whole thing, but mostly about the part stating that what goes through the GJ will NOT come back up!...that is enough for a good appointment!!! Hug him for us, and post MORE pics of him!!
Hi Kari! I'm so glad to hear things are going well in KC. That's awesome that Carsten had such a good doctor's appointment and that you guys are pleased. We miss you down here!! Please keep posting pics of handsome Carsten! Love-Paige
Sounds like Carsten had a great doctors appointment. I am so happy for you guys. After Tess had her T and A surgery things have been wonderful. She sleeps so much better and is even eating more. Her tonsils had gotten so big that they were causing her to choke a lot and it was hard for her to swallow. Her airway was 90%blocked!! She is packing in the food these days. I will pray for you guys!
What a handsome little man! Praise the Lord for proactive doctors! xoxo Stephanie
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